Mission Days in Washington, D.C.

Today’s post comes to us from Thea Zajac, Greater Bay Area Community Outreach Manager.

Blog_Mission Days_Dome Group

The “Power Shot”
Thea Zajac, Community Outreach Manager, Lauren Wilkerson, Patient Services Program Manager, Nance Hirano and Kenya Wheeler, local volunteers

The Greater Bay Area Chapter delegation of 8 staff and volunteers had a wonderfully successful trip to Washington, D.C. for Mission Days! Our group joined 250 staff and volunteers from LLS chapters all over the country to lobby our federal legislators on two bills that would reduce costs for oral cancer therapies (HR 460 and HR 1801).

 You can still help! Stand with our patients and sign the petition now!

I am so thankful and inspired by our group and their dedication to our mission of increasing cures and access for our patients. Lauren and myself were joined by Jack Aiello, Brian Sholes (from the South Bay), Jim & Marilyn Rossen (from Monterey County) as well as Kenya Wheeler and Nance Hirano (from the East Bay). Here is a recap of our brief, but action-packed time in the Capitol.

Blog_Mission Days_GBAC DelegationMonday was spent connecting with delegates from all the other chapters and learning about the two bills we would be lobbying support for with our Representatives and Senators. The LLS Office of Public Policy staff was superb at making the bills easy to understand as well as connecting them with all the amazing patient stories that were in the room.

Blog_Mission Days_Kenya and Suleika

Our volunteer Kenya Wheeler with inspirational speaker Suleika Jaouad

On Tuesday we started off the day with an address by an inspirational speaker, Suleika Jaouad. Suleika is a 24-year-old MDS and AML survivor who writes a column for the New York Times about her cancer experience called: Life, Interrupted.

We then headed to the hill to meet with Representative’s and Senator’s offices to talk to them about the importance of increasing affordable access to life-saving treatments for our patients. Our team visited a total of 5 different offices including: Minority Leader Nancy Pelosi (12-San Francisco County), Representative Barbara Lee (13-Alameda County), Representative Zoe Lofgren (19-Santa Clara County), Representative Sam Farr (20-Monterey County) as well as Senator Dianne Feinstein’s office.

Blog_Mission Days_Lee Office

Our East Bay crew at Representative Lee’s office

Blog_Mission Days_DF Staff

Our delegation along with some of our colleagues from the Central California Chapter at Senator Feinstein’s office.

All our legislators were very receptive and genuinely engaged by the stories that our survivors and staff had to tell.  I have no doubt that more co-sponsorship for these bills will come out of those visits.
Special thank yous to all our delegates for traveling across the country to raise your voice. I look forward to the day when cancer treatment is affordable and accessible for every patient. Thanks for all your hard work over the last two days, we are one step closer.

This entry was posted in General SF Chapter. Bookmark the permalink.

One Response to Mission Days in Washington, D.C.

  1. Harriet Patterson says:

    Way to go, Mission Team! And special thanks to our amazing volunteer advocates!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s