How to earn TNT fundraising dollars and help cancer researchers

Blog_Leukolab logoLeukoLab has been a Team In Training sponsor since 2012 and their doctors and nurses have been collecting blood cells from healthy donors for over 15 years. LeukoLab was established to provide biotech companies and academic institutions with a reliable source of blood products for the development of cancer treatments and other therapies.

If you qualify, you can become a member of their donor pool and donate blood and/or bone marrow samples repeatedly, at safe intervals, for which you will be generously compensated each time (ranging from $35-$850 per donation). You will be paid directly by check and you may choose to have a portion or all of this money go towards your Team In Training fundraising efforts!

Blog_Karla Vasquez_LeukolabSpecial thanks and congratulations to Team In Training participant Karla Vazquez, who just completed America’s Most Beautiful Bike Ride in Tahoe. That’s a Century Ride – 100 miles! This was her first event with TNT and she joined to support her 12-year-old nephew who battled leukemia for six years and is now in remission. On top of raising money on behalf of LLS she has also donated her blood for researchers working on therapies in these areas!

Your single donation can support up to 50 different research projects – help researchers spend less time looking for donors and more time on results.

To learn more, visit www.leukolab.com, or call (510) 521-7400 ext. 280 and mention that you are a Team In Training participant. Leukolab is conveniently located near the Oakland Airport in Alameda. Go Team!

 

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This Month at LLS

Blog_JuneSaturday, June 15th: 2013 San Francisco Man & Woman of the Year Grand Finale 
The 2013 San Francisco Man & Woman of the Year will be crowned based on their success in generating funds for the Leukemia & Lymphoma Society during their 10-week fundraising campaign. Cocktail reception and silent auction begin at 7pm. Dinner, program and awards begin at 8pm followed by a live band and dancing! The Fairmont, 950 Mason Street, San Francisco. For tickets, contact Michelle Flatley at michelle.flatley@lls.org or (415) 625-1133 for more information.

Tuesday, June 18th: How to Make Informed Choices about Standard Care and Clinical Trials
Health Care Professional Dinner at Pampas in Palo Alto. Pre-registration required, please contact Lauren Wilkerson at lauren.wilkerson@lls.org.

Wednesday, June 26th: Mantle Cell Lymphoma, Understanding Your Treatment Options: FREE Telephone/Web Education Program
John Leonard, MD, The Richard T. Silver Distinguished Professor of Hematology and Medical Oncology, Weill Cornell Medical College will be speaking. You can register here or call (877) 264-4949, ext. 2.

Thursday, June 27th: 2013 North Bay Man & Woman of the Year Grand Finale
The first ever North Bay Man & Woman of the Year winners will be announced at the Grand Finale event at Jacuzzi Family Vineyards, 24724 Arnold Drive, Sonoma CA. Reception and silent auction begin at 6:30pm. You can support our candidates by donating directly to their fundraising efforts, attending one of their events or purchasing a table at the Grand Finale. For tickets, please contact Alisha Basich at alisha.basich@lls.org or call (707) 544-4350 ext. 2007 for more information.

June 8th-29th: Team In Training FREE Workouts
Don’t forget, Team In Training is offering FREE Workouts with the Team so that you can try out the program before you register! Check out our information meetings page here to find one near you.  

Wednesday, July 17th: Non-Hodgkin’s Lymphoma Presented by Caroline Behler, MD
Non-Hodgkin’s lymphoma is a type of blood cancer that affects the immune system organs, and is one of the most common types of cancer in the United States. An expert oncologist will explore the different types of Non-Hodgkin’s Lymphoma, risk factors, symptoms, diagnostic evaluation, and current and emerging treatment options. California Pacific Medical Center, San Francisco. 4-5:30pm 2333 Buchanan St., Enright Room.

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Mission Days in Washington, D.C.

Today’s post comes to us from Thea Zajac, Greater Bay Area Community Outreach Manager.

Blog_Mission Days_Dome Group

The “Power Shot”
Thea Zajac, Community Outreach Manager, Lauren Wilkerson, Patient Services Program Manager, Nance Hirano and Kenya Wheeler, local volunteers

The Greater Bay Area Chapter delegation of 8 staff and volunteers had a wonderfully successful trip to Washington, D.C. for Mission Days! Our group joined 250 staff and volunteers from LLS chapters all over the country to lobby our federal legislators on two bills that would reduce costs for oral cancer therapies (HR 460 and HR 1801).

 You can still help! Stand with our patients and sign the petition now!

I am so thankful and inspired by our group and their dedication to our mission of increasing cures and access for our patients. Lauren and myself were joined by Jack Aiello, Brian Sholes (from the South Bay), Jim & Marilyn Rossen (from Monterey County) as well as Kenya Wheeler and Nance Hirano (from the East Bay). Here is a recap of our brief, but action-packed time in the Capitol.

Blog_Mission Days_GBAC DelegationMonday was spent connecting with delegates from all the other chapters and learning about the two bills we would be lobbying support for with our Representatives and Senators. The LLS Office of Public Policy staff was superb at making the bills easy to understand as well as connecting them with all the amazing patient stories that were in the room.

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Our volunteer Kenya Wheeler with inspirational speaker Suleika Jaouad

On Tuesday we started off the day with an address by an inspirational speaker, Suleika Jaouad. Suleika is a 24-year-old MDS and AML survivor who writes a column for the New York Times about her cancer experience called: Life, Interrupted.

We then headed to the hill to meet with Representative’s and Senator’s offices to talk to them about the importance of increasing affordable access to life-saving treatments for our patients. Our team visited a total of 5 different offices including: Minority Leader Nancy Pelosi (12-San Francisco County), Representative Barbara Lee (13-Alameda County), Representative Zoe Lofgren (19-Santa Clara County), Representative Sam Farr (20-Monterey County) as well as Senator Dianne Feinstein’s office.

Blog_Mission Days_Lee Office

Our East Bay crew at Representative Lee’s office

Blog_Mission Days_DF Staff

Our delegation along with some of our colleagues from the Central California Chapter at Senator Feinstein’s office.

All our legislators were very receptive and genuinely engaged by the stories that our survivors and staff had to tell.  I have no doubt that more co-sponsorship for these bills will come out of those visits.
Special thank yous to all our delegates for traveling across the country to raise your voice. I look forward to the day when cancer treatment is affordable and accessible for every patient. Thanks for all your hard work over the last two days, we are one step closer.

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Celebrate Two Anniversaries with TNT

Nike_womens-_Marathon_coursemap-590x330The Nike Women’s Marathon in San Francisco is the largest women’s marathon in the world (although men are invited too!) and the 2013 run will be the 10th anniversary of the event. The random draw opens on June 3rd…but why wait? Be part of history and celebrate the 10th Nike Women’s Marathon along with the 25th Anniversary of Team In Training.  Joining the Team guarantees your race entry spot! And let’s not forget all the extra special touches: breathtaking views of the city, including Union Square and the Pacific Ocean, and tuxedo-clad San Francisco Firemen ready to greet you at the finish line with your Tiffany & Co. official finisher necklace. Sign up to participate or learn more here.

Kick-off for our Fall Season was mid-May, and for the entire month of June you are invited to be our guest at a FREE workout with the Team. This is a great way to experience our amazing program first-hand, meet our professional coaches, and see what Team In Training is all about! To find a run, walk, cycle, or triathlon workout near you, check out our info page. We have an incredible list of events for Fall in addition to the Nike Women’s Marathon, so be sure to see where we’re heading.

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A Special TNT Mother’s Day Tribute

Happy early Mother’s Day to all the incredible moms out there! To celebrate, we’re bringing you the story of two Team In Training participants who also happen to be mother and son. Natalie Parrish is a not only a leukemia survivor, but a TNT superstar. She has completed two hike events, four Olympic triathlons, and one half marathon. Inspired by his mother’s fight against cancer and dedication to the TEAM, her son Dean has been itching to be old enough to join, too. Read on to hear their story and why the Parrish family comes back to Team In Training season after season.

Natalie: Being given a cancer diagnosis was the most terrifying thing I’ve ever faced. Of course, being a mother, the first thought was about my children. All our lives changed with that diagnosis the doctor gave me. It’s amazing how quickly and without any warning your life can be turned upside down. I felt so scared. I remember asking my husband if I was going to die, not knowing he just faced that same question from our 9-year-old daughter. I tried to be brave for my kids; I tried to be as normal for them as possible. The fear that I saw in their eyes angered and saddened me, for I was the one that caused it. Me, their mother, put this fear in them. I remember hoping for life. I wanted to live. I wanted more than anything to watch my children, Dean and Allie, grow into the fine adults I know they would become. I can remember lying in my hospital bed thinking how much I wanted to be there for them when they learn to drive, for their first date, graduation, marriage, parenthood, and all of the things in between. 

I had just finished the main part of my chemotherapy treatment when I received a TNT flyer in the mail. I opened it up, read it, handed it to my husband and said, we are going to do this. I need to do this. You see, the very first bit of information my doctor gave me in the hospital regarding the type of leukemia I had was a pamphlet provided by The Leukemia & Lymphoma Society. My doctor also informed me that I was lucky to have gotten the leukemia that I did, patients with this subtype of AML are among the most frequently cured he told me. The fact that this disease has gone from highly fatal to highly curable is amazing. Great efforts made by funded researchers and scientist worldwide have made this possible. That is why am I alive today. Why I was here to watch my daughter graduate from the 5th grade and begin her journey through middle school. That I was here to see my son graduate from 8th grade and witness him embrace his role as a high schooler. 

I have done two hike events, four Olympic triathlons, and one half marathon all with Team In Training to raise money and awareness for blood cancer, for I personally know, just how important new advancements to cancer treatments are. Now my son and I will embark on a new journey together, a TNT journey, where I will be his personal cheerleader and an honoree for his team. I am so excited for him and I can’t wait to see him cross the finish line! 

This Mother’s Day we are going to the Henry W. Coe State Park and the Pine Ridge Association’s annual Mother’s Day breakfast. This is one of my most favorite Mother’s Day activity to do with my family. The morning starts with a just over a mile hike to a yummy western-style breakfast, a little bluegrass music, and amazing views. 

Dean: My parents have been involved with TNT since the Spring Season of 2009. My mom was diagnosed with acute promyelocytic leukemia in 2008. When she was in the hospital I, along with my sister, my dad, and all who knew her, feared we would lose her. During this time I did not cry once because I thought that if I did it was admitting that she could die. It might have been bad to repress my emotions, but that is what I thought was best. After my mom went into remission both my parents joined Team In Training to raise money for The Leukemia & Lymphoma Society. I have been to several meetings, team events, supported water stops, and have volunteered at the LLS office. 

Natalie and Dean ParrishNow that I am 16 years old I can finally join the team too. I want to join the triathlon team for three reasons. One, for my mom, two, to support The Leukemia & Lymphoma Society, and three, just to be able to say I’ve done a Half Iron distance triathlon! I am very excited about being part of an organization that helps so many people, people like my mom. I can’t wait for my first workout and to meet the team.

Since my parents are very involved with Team In Training, they were all for me joining the team. They did suggest that I might want to do an Olympic distance instead of the Half Iron distance triathlon as my first event. Hah! Of course I want and will do the Half! So that is what I have signed up with the fall triathlon team to do. I will be training for the Big Kahuna triathlon in Santa Cruz. I will swim, bike and run 70.3 miles to help find a cure. 

TNT teams are forming now for marathon, half marathon, triathlon, cycling and hiking events. For more information, call (800) 446.9460 or visit www.teamintraining.org/gba.

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This Month at LLS

May calendarSaturday May 18th: Team In Training Fall 2013 Kick-Off
There is still plenty of time to sign up for one of Fall Season’s incredible events, including the popular Nike Women’s Marathon! Registration at 9:15am and kick-off begins at 10am.
San Francisco: Grand Hyatt, 345 Stockton St. San Francisco
Silicon Valley: Crowne Plaza Foster City, 1221 Chess Dr, Foster City

Saturday May 18th: Man & Woman of the Year Silicon Valley Grand Finale
Enjoy cocktails, dinner, dancing, live and silent auctions and the announcement of our 2013 Man & Woman of the Year Silicon Valley at the Computer History Museum, 1401 N. Shoreline Blvd., Mountain View. Tickets are available at our online store, or contact Miranda Glaser, Campaign Manager, miranda.glaser@lls.org or 408.490.3133.

Tuesday, May 21st: Living with Slow-Growing Lymphoma: FREE Telephone/Web Education Program
Stephen Ansell, MD, PhD Professor of Medicine in the Division of Hematology Department of Internal Medicine, Mayo Clinic, Rochester, MN will be speaking. You can register at www.lls.org/programs or call 866.992.9950 ext. 309.

Wednesday, May 29th: PTCL– Diagnosis and Treatment Update: FREE Telephone/Web Education Program
Julie Vose, MD, MBA Neumann M. And Mildred E. Harris Professor Chief, Division of Oncology/Hematology, Department of Internal Medicine, University of Nebraska Medical Center will be speaking. You can register at www.lls.org/programs or call 866.992.9950 ext. 314.

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A Mission Field Trip!

Celgene Trip

LLS Staff on their Mission Field Trip in front of Celgene research facilities

On Thursday, April 18th, LLS staff traveled to the translational research facilities of Celgene in San Francisco’s Mission Bay district for a Mission Field Trip. Today’s post comes to us from Thea Zajac and Harriet Patterson, two of our superstar staff members on our Mission Team. Read on to hear about their exciting day in learning first hand how the funds we raise translate directly to research.

We began our day with Vicki Sung, PhD, Associate Director and scientist at Celgene, who gave an overview of the oncology drug development process to the group. She began with an outline of basic cancer biology and the hallmarks of cancer cells. Some of them included not dying when a normal cell would, reproducing without stopping, and an ability to “trick” the immune system which contributes to flying under the immune system’s radar. These characteristics have been the target of many of the new “targeted therapies” developed in the past 10 years and continue to shape our understanding of how cancer cells grow successfully.

She shared some background on the field of translational medicine—which is how basic science findings from the lab are used in the clinic and then clinic findings come back into the lab. She also described “biomarkers” which help both identify potential targets for new drugs and also can be developed into predictive tools for identifying whether treatments will work for a particular patient and/or indicators of prognosis. She shared a very stunning fact—that she has been working for over 20 years in this field and this is the first company that she worked for which actually had drugs that had made it to patients. I think this helps to underscore why connecting with patients and organizations like LLS is so valuable for scientists and researchers—it brings them closer to the people they are hoping to help with their work. Lab at Calgene

Following our session, we had a tour of the facility and then joined in a lab team meeting at lunch where the 30+ employees from Celgene and our LLS team met each other, heard about our work and listened to a couple of presentations. Chad Saward, from Celgene’s Patient Advocacy office, presented about Celgene, the company’s priorities and history, and also about all the work they are doing with LLS around patient access, financial assistance, and patient education. He also talked about partnership with LLS on the Cancer Oral Parity Bills passed in a number of states. I presented next with a brief overview of LLS and our services, a longer discussion about our research program, our Therapy Acceleration Program, and the partnership that was launched with Celgene last fall, and finally a discussion about local partnership opportunities. We concluded the day with a great Q & A session with their team—many folks had questions and knowledge to contribute about advocacy and oral parity, our research partnership, experiences in Light The Night, and clinical trials.

You can learn more about our Mission and Goals at LLS here.

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